Monday, November 21, 2011
A Long Night
Ryan's meds have been adjusted. They are keeping the Lamictal the same, but adding a dose of Keppra to his daily meds. Last night the thrashing about starting again in mid afternoon and continued to increase in intensity. I was hopeful that the Keppra would calm it, but at 1 am when he started crying with each cycle of thrashing ... and there were definite cycles, I finally requested Ativan for him. It was a low dose of Ativan, but it did the trick. Within just a few minutes, he was resting peacefully. It was such a relief to see him calm and at rest.
Today the Hospitalist (Ryan's Doctor here at the hospital) is going to be speaking with Ryan's Neurologist and his Metabolic Geneticist. Hopefully, they will be able to coordinate the best plan for Ryan. I think I will also put a call into the Metabolic Geneticist just to make sure he has all the most recent information since our last visit, and I'll call Dr. Rhame to give him an update.