Ryan had therapy at 9 am yesterday, which required waking him early. Unfortunately that seemed to set off seizures. In the past 24 hours, Ryan has had approximately 29 seizures, including some where he stopped breathing for 3-5 seconds. Obviously, I'm waiting to hear back from the Neurologist now.
Today is also the two week marker for the blood work that our Metabolic Geneticist ordered. I don't know if the test results will be back yet, but I'll certainly call later today to find out. His office is always great about calling me as soon as they get results, but I think I'll still call this afternoon just in case they're busy.
I also need to schedule a swallow study for him since he's no longer eating by mouth and schedule an appointment with a audiologist for testing since he has almost entirely stopped using his voice. We want to make sure there isn't a medical reason for either of those issues before we start looking for therapeutic ways to fix them.
And, somewhere in the mix of everything today, we have a lot to get done in school, so I better get off the computer and get the kids moving for the day. :) I hope you all have a great day!
