Thursday, June 18, 2009

More tests and more good news...

We have now made it for 4 days without any additional vomiting. Whewhoo!

We had a modified barium swallow test with a speech pathologist today. The Speech Pathologist simply prepared various textures of food to give to Ryan and watched the way he swallows on x-ray. The concern was that Ryan might be aspirating food (swallowing it into his airway instead of his tummy).

They started with a thin liquid similar to water or formula. Then moved to a thicker liquid, think nectar. And, then finally to stage 3 applesauce.

The good news is that Ryan did not aspirate any of the food. However, he has a tendency for "deep penetration," which basically means he swallows and holds the food over the airway before finishing the swallow. The really good news is that he doesn't do the deep penetration thing when drinking cold items.

Will finish in a minute...

Okay, so I forgot to come back and finish ... worse yet ... I don't remember what else I was going to tell you. It must not have been that important, right?

Sunday, June 14, 2009

Another weight check...

We went to the dr's office this morning for another weight check. We did not get to see our Pediatrician as it's his day off. I felt quite confident going since we made it through the night without any vomiting. Whewhoo!

His weight held steady over night. He still weighs 15 pounds 11 ounces. So, the plan is to feed him Neocate, essentially an ounce an hour, and to keep in close touch with Dr. Rhame.

Ryan threw up on the way home, but did just fine most of the day.

Within a few minutes of getting home Dr. Rhame called. In fact, we've spoken about 5 times today. He consulted with the GI Specialists. He has recommended a 3-4 day trial of feeding nothing but Neocate.

Dr Rhame has recommended checking Ryan into the hospital so that we can get the GI and Ped Surgeon consult expedited. And, since Ryan has started vomiting again tonight, I suspect we'll admit him tomorrow or Monday at the latest. It seems we will probably be doing a g-tube soon.