Thursday, May 7, 2009

Johnathon has been invited to a birthday party for his good friend,
and he is

Wednesday, May 6, 2009


Ryan had an appointment with an Urologist today. He was quite mad about them examining his boy parts. When the dr was done with the exam, I nursed Ryan to calm him while the dr explained the needed surgery.

As I was nursing him, I looked down and saw this:I thought it was so funny that I grabbed my cell phone and took a picture! I'm still pretty entertained by this picture!

As for the surgery, Ryan needs to have a "double orchiopexy surgery with hernia repair." We are waiting to schedule the surgery until we meet with the ENT again and the Gastroenterologist. If they are going to surgically repair Ryan's submucous cleft palate, or if they are going to surgically implant a feeding tube, we may be able to combine the surgeries. We will see both of them later this month. I'll keep you all posted.

Tuesday, May 5, 2009

We had an end of year picnic today with all of our co-op friends. It was so enjoyable. We hope to see everyone a lot over the summer!

Monday, May 4, 2009

Another dr's appointment

Today we had an appointment with the Developmental Pediatrician. This is my least favorite appointment of all. It seemed that during the past 3 appointments with this Dr that all they really told me were the milestones that Ryan should be reaching ... but hasn't. I'm really very aware of these milestones and don't really need someone to tell them to me. They also push therapy a lot.

We still covered all the milestones today, but I also felt that I received some value from today's appointment. We discussed the growth and feeding issues we've been having. I explained that my Pediatrician had referred us to see a Pediatric Gastroenterologist but that we had not been able to get an appointment scheduled yet. So, she called and we now have an appointment for May 20th. She also ordered a modified barium swallow test with a Speech Pathologist and Radiologist. This is one of the tests that the Ped Gastro specialist will want. Having the test done prior to our appointment with him will hopefully speed that process along.

We also discussed that at our next appointment we're going to discuss the need for a special car seat and probably a wheelchair/stroller combination. Typically you move a child to a forward facing carseat when they are 1 year old and at least 20-22 pounds. However, Ryan will need to stay rear facing until he has better head & neck control. I feel a sense of relief that someone will have information on the available resources to meet those needs. So, I can put that out of my mind until October when we go back.

So, the next dr's appointment will be on Wednesday morning ... the Urologist.


We took the kids bowling today and had a great time! I wish I could have caught on video the fun of watching the kids bowl. Johnathon ... well, imagine a director leading an orchestra and that is what Johnathon looked like as he watched his ball roll down the lane. Deborah played all of my 2nd frames ... and I still won the first game and gave Dwight a close run for his money on the other game. It was lots of fun.

Sorry the pictures are a little grainy. Hope you enjoy them anyway.