Wednesday, May 12, 2010

This is the "rest week" before my next round of chemotherapy, and resting seems to be about all I am energetic enough to do. I feel very anxious to return to my normal routine of life. I want to work up a good sweat, lift some weights, etc.

Weird thing ... my mediport seems to make the right side of my neck rather stiff. I wonder if that's normal. Yesterday I thought perhaps it was just cause I've been babying it and not stretching enough. So, I started doing very gentle stretching, but this morning it just feels more stiff.

Yesterday, one of my friends from Austin came by to visit. It was so fun to see her and talk with her. It really lifted my spirits to visit with her. (Thank you for coming to visit, Amy!)

Then my "gourmet friend" came by to drop off dinner and stayed to visit for a while. My kids loved that she brought 2 of her kids with her. They had a great time catching a lizard! (Thank you for visiting and for the yummy dinner!)

I also received 2 beautiful cards in the mail yesterday and a special email. One was from my Aunt Della and the other was from my Uncle Jr & Aunt Anita. The email was from my Aunt Jamie & Uncle Leslie. I'm so blessed to have a wonderful extended family. Isn't it sweet that with all of their nieces and nephews (and they do have A LOT) that they take the time to show their love for me. They've always been like that. My aunts and uncles have a great ability to make me feel like the most important person in their world. Isn't that cool? I hope I can do the same for others.

Ryan is doing well. We increased his seizure meds and so he's sleeping in each day until about 10.30 or 11.30. His myoclonic seizures have decreased from 20-30 a day to about 10-15 each day. I need to track them really closely for a couple of days before we go see the Neurologist again next week. I'm anxious to hear the results of the EEG.

Speaking of results, the results from the tests that the metabolic geneticist ordered should be in by the end of next week. The neurologist suspects they will all come back as normal. If they do, it just means that we've eliminated more possibilities and that's okay.

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