A Good Day

Today started early with seizures, followed by a 7.45 am appointment that lasted till 10.30. Then just as I was leaving that appointment, Dwight called to say that Walgreens had found 2 locations that had Ryan's new brand name drug in stock. One of those locations was about 1/2 mile from where I was at. Wasn't that convenient? I felt quite blessed.

After picking up the new prescription, I dropped Jacob and Deborah back off at home. Ryan and I headed over to the GI Specialists office to drop off a form they needed to complete the "correct way" so that we could get insurance to cover this insanely expensive formula. (Have I mentioned that it's costing $40/day?) Hopefully, we'll be able to get the right prescription in the right hands and get the insurance to cover at least some of the formula.

After a few nights of less than 5 hours of sleep, I was extremely tired. Thankfully my Dad was available to chat on the phone while I was driving over there. (Thanks, Dad, for keeping me awake, and for a great conversation! I love and appreciate all your counsel and your support!) On my way home, I stopped and bought myself a Lemonade from Chick-fil-a. I love their lemonade! Yum... anyway ... I was so tired that I felt myself kind of weaving a little. Thankfully, I wasn't far from home.

When I got home my sweet husband took over Ryan and made sure the other kids were taken care of so that I could lay down. I remember lying down on the bed at about 2, turning onto my side, and then ... well, nothing until after 5. I seem to recall my sister calling, but I can't remember what she said. (Sorry, Sis, I'll call you tomorrow.) It was nice to get a few good hours of sleep.

Tonight I had a great night. I talked with several friends this evening, and had an especially nice visit with a friend tonight, and felt very uplifted and motivated by the conversation. Perhaps I'll tell you more about that tomorrow night. It's late and tonight I'm going to hope for more than 5 hours of sleep.

Thanks for everyone's love and support!